Update
15-
June 5 update-
Olivia is a very brave girl. I am so proud of how she handled her pain in the hospital and so far through her recovery. In her mind, it has always been to be better than the day before. She continues to have what her surgeon calls "blips", but she is pushing through. As of late she is dealing with lower left back pain, and some burning in her ribs, which is nerve issues from the manipulation of her muscles in moving them from the bone during surgery. She has also felt far more dependent on others than she would like which has frustrated her. The things we take for granted are difficult for her, but those will get better in due time. Right now, it's nearly summer, school is out, and she wants to be able to swim and go to the beach, but can't. And it will be months more before she can.
On a personal note, I sound like a broken record I know, but we are so appreciative of the calls, notes, cards, and visits Olivia has received. I can't begin to tell you how helpful it is and continues to be as we transition home and Olivia starts to heal. I hope to be back to work full time soon. In the meantime, we couldn't be doing all this without all of you.
Olivia is a very brave girl. I am so proud of how she handled her pain in the hospital and so far through her recovery. In her mind, it has always been to be better than the day before. She continues to have what her surgeon calls "blips", but she is pushing through. As of late she is dealing with lower left back pain, and some burning in her ribs, which is nerve issues from the manipulation of her muscles in moving them from the bone during surgery. She has also felt far more dependent on others than she would like which has frustrated her. The things we take for granted are difficult for her, but those will get better in due time. Right now, it's nearly summer, school is out, and she wants to be able to swim and go to the beach, but can't. And it will be months more before she can.
On a personal note, I sound like a broken record I know, but we are so appreciative of the calls, notes, cards, and visits Olivia has received. I can't begin to tell you how helpful it is and continues to be as we transition home and Olivia starts to heal. I hope to be back to work full time soon. In the meantime, we couldn't be doing all this without all of you.
Update
16-
Olivia continues to heal! At just over 5 weeks from her surgery, she accomplishes new things every day, regaining the ability to do small tasks she hasn't been able to do since before her surgery. This has helped in building back her confidence! Her next goal; wading in a pool. Except for a small bit of leftover scabbing, this should happen soon. It's been hard to recover with all her friends hitting the pool or beach!
Next up will be Olivia's post op appointment in Philadelphia on July 10th!
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